Forums > Personal > Johnny Kennedy - The Boy Whose Skin Fell Off

forum rss feed
Author

_amadeus_ user not visiting Queenzone.com

Bohemian: 763 posts
add to buddy list send PM

Posted: 27 Jun 05, 01:05 Edit this post Reply to this post Reply with Quote

Any of ya heard of him?

-

Johnny Kennedy died in 2003. His skin 'fell off', don't know how. He was on TV, and he never went through puberty, so he always looked very young. His favorite band was Queen. I heard 'Don't Stop Me Now' on the TV, and I wondered what my mom was doin' watchin' somethin' about Queen. At his funeral, they played his favorite song, 'Don't Stop Me Now'. It continued through the credits.

-

...


Nobody is always a winner, and anybody who says he is, is either a liar or doesn't play poker.
FairyQueen user not visiting Queenzone.com

Bohemian: 353 posts
add to buddy list send PM

Posted: 27 Jun 05, 02:52 Edit this post Reply to this post Reply with Quote

I saw it....it was very sad, but he was the sweetest person I have ever seen....


"A man's private thought can never be a lie; what he thinks, is to him the truth, always." - Mark Twain



Visit my band's site at:

senecafalls.crystalflare.com





dragonzflame user not visiting Queenzone.com

Deity: 2456 posts
add to buddy list send PM

Posted: 27 Jun 05, 04:53 Edit this post Reply to this post Reply with Quote

I didn't see it but I read about it. He had this extremely unpleasant genetic disorder that meant that the lightest touch would cause his skin to blister and fall off. Not surprisingly, it's unbelievably painful and causes massive scarring.
Makes you wonder at those people that don't support genetic screening for people who are at risk...imagine having this baby and knowing that every time you pick it up you're making its skin blister.


When life hands you lemons, add vodka.
Megamike The GREAT user not visiting Queenzone.com

Deity: 2264 posts
add to buddy list send PM

Posted: 27 Jun 05, 09:39 Edit this post Reply to this post Reply with Quote

I just watched it last night.. it was a real tear jerker... although you have to give him some credit, he did have a sense of humor..

my dad told me that they played a Queen song on it, something to do with 'in there, on there..' so I thought it was Hang on in there.... what a moron, there wasn't even a single 'in there' played... and then he said.. well they grunt and do a lot of Ohs and Ughs... so now I am baffled.. again, it was Dont Stop Me Now.. I mean come on, he has lived with a Queen Fan for 30 years, he should have known that song.. I played it enough.


My Brothers and Sisters all hated me 'cause I was an only child...

-Weird Al (Generic Blues)



I gave up on books when 'To Kill A Mockingbird' gave me no useful advice on how to kill a mockingbird.
Live Killer user not visiting Queenzone.com

Bohemian: 127 posts
add to buddy list send PM

Posted: 27 Jun 05, 10:28 Edit this post Reply to this post Reply with Quote

didn´t he have a web site? Could someone put a link to it?

PieterMC user not visiting Queenzone.com
PieterMC
Deity: 3931 posts
add to buddy list send PM

Posted: 28 Jun 05, 07:53 Edit this post Reply to this post Reply with Quote

Just watched this last night. I had never heard of that condition before watching the show. I cannot even begin to imagine the pain that he must have gone through.

He certainly had a sense of humor though.

Ray D O'Gaga user not visiting Queenzone.com
Get down, make love
Ray D O'Gaga
Royalty: 1259 posts
add to buddy list send PM

Posted: 28 Jun 05, 16:06 Edit this post Reply to this post Reply with Quote

I also watched the doc last night. It was very moving. What a brave gentleman, to have endured so much with such good humor, pluck and moxie.


Blow it out your ass.