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Oberon user not visiting Queenzone.com

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Posted: 03 Jul 05, 12:13 Edit this post Reply to this post Reply with Quote

This is a little delicate, so forgive me if this is taken the wrong way, but I was wondering if Fairy has been blind since birth, and if so, what image she/he has of Fred and the other boys? The image is so key, I was wondering if Fairy's perception is significantly different than those who are sighted as only having the music would be a totally different influence and experience of the band


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flash00. user not visiting Queenzone.com
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Posted: 04 Jul 05, 19:30 Edit this post Reply to this post Reply with Quote

Oberon wrote:

This is a little delicate, so forgive me if this is taken the wrong way, but I was wondering if Fairy has been blind since birth, and if so, what image she/he has of Fred and the other boys? The image is so key, I was wondering if Fairy's perception is significantly different than those who are sighted as only having the music would be a totally different influence and experience of the band


you should email fairy and ask her she dont bite well she bites me sometimes lol if your reading this fairy big kisses to ya xx


oo la la
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Posted: 05 Jul 05, 06:04 Edit this post Reply to this post Reply with Quote

Would be interesting.


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Posted: 07 Jul 05, 13:33 Edit this post Reply to this post Reply with Quote

Hi Oberon and all,
sorry if I haven't replied sooner but these days I'm so busy I check the boards seldom, and I hardly ever check the personal section, though it sure is cute!

As to the question, I used to be a bit bothered by such questions in the past, but as I grow older I realize that questions are natural and OK, and that it's actually by answering and by talking about these "delicate" issues that they cease to be delicate and become day-to-day life for everyone. So thanks for the question, actually!

Yes I'm blind since birth - I can see light well but that's not enough to see any image so yes, I have no image of Freddie as you have it. Since it's always been like this for me, I can't tell you if my perception of him and boys in general is different. All I can say is that we all perceive the world as we know it, so to me the perception I have of people is as complete as it can get for me.

So I think you guys should tell me if you think that only having the music would be a very different experience of Queen. I personally think that we all experience things in our own way. The way you Oberon experience Queen will be different from anyone else on the forum, because of the way they interpret the lyrics, of the degree they know music, perceive images, etc. Some people are musicians and will mostly focus on the members' musical talents. The more poetic ones will pay more attention to the lyrics. Then there are the types who have the hots for band members because of their looks, and they don't give a damn what they sing about, or how they play instruments.
So for everyone it is different. The lack of sight is only one reason why I perceive Queen differently from you or anyone else. Though I admit it may be an important factor.

To me Freddie is present in my life as an energy. His spirit is near me. This is a dimension that I perceive - or believe to perceive - and I guess many people on this board do not perceive this dimension, so regardless of sight I would perceive him differently from you, just because of this gift, or of this belief, whatever it is.

I don't know if this answers your questions, but you sure can ask more and I'll try to answer. I think this can be a good forum topic about how we all perceive Queen, and the world in general.

Take care everyone

Fairy

Ps. There's a good chance that I may acquire some sight in the future. If it happens I'll certainly post on the forum!!! It will be so thrilling to see Freddie for the first time!!!! If I can I'll bring his picture with me so I will be the only person in the whole world who had him as her first sight! LOL



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Posted: 07 Jul 05, 13:34 Edit this post Reply to this post Reply with Quote

flash00. wrote:

Oberon wrote:

This is a little delicate, so forgive me if this is taken the wrong way, but I was wondering if Fairy has been blind since birth, and if so, what image she/he has of Fred and the other boys? The image is so key, I was wondering if Fairy's perception is significantly different than those who are sighted as only having the music would be a totally different influence and experience of the band


you should email fairy and ask her she dont bite well she bites me sometimes lol if your reading this fairy big kisses to ya xx

Great, Flash!!! Now you're going to bite ME for not writing for ages!!!!!! Ouch!!!!

Thank you baby

Fairy


“If the house crumbles... I’ll just build it again”

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Posted: 07 Jul 05, 17:33 Edit this post Reply to this post Reply with Quote

Thanks Barry!!!



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Posted: 07 Jul 05, 17:38 Edit this post Reply to this post Reply with Quote

Great information Fairy. Hope you do get your sight. And hope you also get your wish to have Freddie as the first thing and person you get to see.

Will you be having surgery? I know here in the USA, some people who were born blind, get cornea transplants to gain sight.

I also know that Stevie Wonder has been coming to Johns Hopkins Hospital here in Maryland, USA many times over the years, for tests on a progressing tecnology about a computer chip/implant that sends some kind of signal from the brain to the optic nerve, and they think one day it might work.


xyz
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Posted: 07 Jul 05, 17:45 Edit this post Reply to this post Reply with Quote

Fairy wrote:


Ps. There's a good chance that I may acquire some sight in the future.


I hope so,that would be great for us too!!! :)
I wish you the best of luck,Fairy!!!!




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Posted: 07 Jul 05, 19:17 Edit this post Reply to this post Reply with Quote

Dopo Freddie ti toccherà vedere pure me...vedi tu se ti conviene :P




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Posted: 08 Jul 05, 04:22 Edit this post Reply to this post Reply with Quote

Mettiti in coda, Hitman...


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Posted: 08 Jul 05, 04:56 Edit this post Reply to this post Reply with Quote

I don't mean what I am about to say in any dissrespect at all towards you Fairy. But, I was just thinking, if like you say you are fortunate to one day have your sight return, would you ever consider perhaps making a sketch of what you have percieved, for example, Freddie and the band to look like, and then compare to an actual image?

It would be a great way to see how the mind works.

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Posted: 08 Jul 05, 07:11 Edit this post Reply to this post Reply with Quote

Fairy- It's not only a beautiful post but also a very interesting one. I used to study Art Therapy, which is mainly directed towards "disabled" people. I'm putting bracketts as this education taught me one thing- there's no such thing as disabbility. As you put it- it's just a different way of perceiving the world around. Different senses are sharper or simply are more important- many people take smell or touch for granted- for others those are essential and in a way much more appreciated and noticed... And as you said- you perceived Freddie as an energy, you were focused on music and this X factor I guess... I found your opinion very mature and extremely interesting- it may start veeeery interesting thread...
I'm sure we all perceive Queen's music in the different way. In fact- I believe we perceive EVERYTHING in our own way. What's funny is that we take it as obvious and think that others do (think, feel) exactly the same. So many are surprised or shocked or feel sorry for those without sight or hearing... What they don't realize that two people with exactly the same senses will perceive the very same thing in completely different way... And for many, many people it's different to understand that. It's of course different story if you lose your sight or hearing being 30-40 or not having it from the birth... But... IMO the best that can be done is people like you TALKING about it openly and... as beautifuly as you did.
Greatkingsam. Now I'm not sure if I know this stuff correctly, but... if Fairy was blind from birth, his perception of a face is different than yours... It's determined by touch, not by sight. Therefore I'm not sure if Fairy could actually draw you a picture of what she thinks Freddie could look like. Fairy- correct me if I'm wrong, but in her case it's impossible to think with pictures- by never having sight her senses (and therefore dreams, imaginations) aren't associated with pictures. Am I wrong? I might be!
PS
Fairy- if any of my sentences seemed crude or harsh- I'm still learning this bloody language :) and maybe couldn't say it exactly the way I wanted :)

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Posted: 08 Jul 05, 07:43 Edit this post Reply to this post Reply with Quote

Fenderek mate, I know what you're saying. However, I wondered how in her mind, from description and such, she percieves Freddie to look. Just something I wondered - how, when pushed, the human brain could manifest a visual based on only sound if you see what I mean.

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Posted: 08 Jul 05, 08:01 Edit this post Reply to this post Reply with Quote

GreatKingSam wrote:

Fenderek mate, I know what you're saying. However, I wondered how in her mind, from description and such, she percieves Freddie to look. Just something I wondered - how, when pushed, the human brain could manifest a visual based on only sound if you see what I mean.

OK, understand. Still am not sure if it's really possible...
When Fairy will get sight (good luck with that!!!!) it's almost like learning everything from scratch. You did it when you were few days old and continued till now. But I know where you are coming from and was wandering that sometimes as well

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Posted: 08 Jul 05, 08:27 Edit this post Reply to this post Reply with Quote

Thanks, Fenderek, for your beautiful post! I didn't find your language to be bloody at all! LOL
I'm not one of those who believe, or makebelieve, that disabilities are no big deal. I hate it!!!! But with regards to perceiving things, yes, disabled people are just like anybody else, since as you say, every 2 people will perceive the world differently from each other anyway.

And Fenderek, you answered GreatKingSam's question perfectly, as far as I'm concerned. I couldn't say it better.

The biggest concern for potential cures in my case is how my brain will interpret the signals which will be restored. I’ve been told that if it works, I will need to undergo lots of rehabilitation. There are people who regained sight after many years of blindness, and now their vision is perfect but they’re unable to interpret images correctly. I’m sure that the vision I’ll acquire will never be good, but I’ll be glad to take anything that they’re able to restore!!!

Fenderek, could you tell me more about art therapy?

Thanks everyone for this constructive discussion. Disabilities should not frighten anyone.

Take care

Fairy



“If the house crumbles... I’ll just build it again”

King Freddie



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Posted: 08 Jul 05, 08:30 Edit this post Reply to this post Reply with Quote

OK dopo Freddie toccherà a Hitman! Tanto la visione del primo sarà così incantevole che riuscirò a sopportare meglio la seconda!! LOL LOL


“If the house crumbles... I’ll just build it again”

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Posted: 08 Jul 05, 08:39 Edit this post Reply to this post Reply with Quote

Hi Arlene, hey you’re so well-informed!!

My condition is called LCA, and it causes the malfunction of the retinal photoreceptors since birth, but the retina in my case still looks intact and healthy. There are different promising therapeutic options: one is the retinal chip you talk about, the device Stevy Wonder is being tested for at Johns Hopkins. It’s a bionic eye (so in this case I would become the bionic woman...watch out!). Another possible treatment will be gene therapy. This too may be in the near future but it may take a few more years. Another option is the transplantation of photoreceptors, but that seems the most remote option for now.

Most researchers have no doubt now that soon treatment for such retinal diseases will be found. My biggest problem will be to “teach my brain” to interpret signals since I’m blind from birth. I can see light though, and they say this means my visual cortex and optic nerve are still active.

If anyone is interested, though I’m sure you all have better things to do! I have a blog on LCA at

http://lcablog.blogspot.com/

Arlene, do you know anything recent about Stevy Wonder at Johns Hopkins??

Ciao!

Fairy



“If the house crumbles... I’ll just build it again”

King Freddie



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Posted: 08 Jul 05, 11:20 Edit this post Reply to this post Reply with Quote

Fairy wrote:

Hi Arlene, hey you’re so well-informed!!

My condition is called LCA, and it causes the malfunction of the retinal photoreceptors since birth, but the retina in my case still looks intact and healthy. There are different promising therapeutic options: one is the retinal chip you talk about, the device Stevy Wonder is being tested for at Johns Hopkins. It’s a bionic eye (so in this case I would become the bionic woman...watch out!). Another possible treatment will be gene therapy. This too may be in the near future but it may take a few more years. Another option is the transplantation of photoreceptors, but that seems the most remote option for now.

Most researchers have no doubt now that soon treatment for such retinal diseases will be found. My biggest problem will be to “teach my brain” to interpret signals since I’m blind from birth. I can see light though, and they say this means my visual cortex and optic nerve are still active.

If anyone is interested, though I’m sure you all have better things to do! I have a blog on LCA at

http://lcablog.blogspot.com/

Arlene, do you know anything recent about Stevy Wonder at Johns Hopkins??

Ciao!

Fairy


Fairy, HI! Stevie Wonder has not been to Johns Hopkins in I would say the last 6 months at least to my knowledge, but He has made several trips here, for testing that computer chip over the last 2-3 years. and it's been on the locan and national news.

They say that if it works, like what you were saying and I was saying, the chip sort of acts as the communication link sending an electrtical charge/impulse between the brain and visual receptors within the brain that control the sensory perception of vision, with the optic nerve.

The last I heard about Stevie Wonder, was I think that originally, he was totally blind...he sort of still is...in that he cannot have clear vision or make out any images, but I think I had heard that he has a sense of light now...like clouded light is all.

I have heard that this is the most promising direction for alot of blind people, but it also depends on what a person's blindeness is from..in order for it to work.

The chip won't work for all blind people. I know there are all kinds of factors involved like is the blindness a result of the cornea, or the retina, or a disease like glaucoma or retinitis pigmentosa, or even diabetes which causes veins to hemorage in the eye.

You might want to call Johns Hopkins Hospital...or go on their website and see if there is some treatment for you. I think that people involved in the experimental phases of the chip..it may be free or less charge.

The area code for Baltimore City maryland in the USA is 410. Call the operator in the USA, Hopkins Hospital is located on N. Wolfe Street in Baltimore City, Maryland.


xyz
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Posted: 08 Jul 05, 11:26 Edit this post Reply to this post Reply with Quote

URGENT!!!

Fairy Read this press release about Stevie Wonder, and the Doctors at Johns Hopkins Hospital, has everything you should need that hopefully...might help! Good Luck!

http://www.agingeye.com/research/studies/stevie_wonder.php

Here's more information articles.

http://www.guardian.co.uk/print/0,3858,3938128-103681,00.html


http://www.eyenet.org/aao/news/eyenet/archive/02_00/news.html

http://www.mercola.com/1999/archive/eye_chip_for_blind.htm



xyz
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Posted: 08 Jul 05, 11:38 Edit this post Reply to this post Reply with Quote

You have not seen my picture then fairy...I'm really handsome, don't listen to those other QZ'ers =)


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